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Advances in medical technologies and clinical practice book series.
Communicating rare diseases and disorders in the digital age / [edited by] Liliana Vale Costa, Sónia Oliveira. — 1 online resource (xxiii, 412 pages) : illustrations. — (Advances in medical technologies and clinical practice (AMTCP) book series). — "Premier Reference Source" -- Cover. — <URL:http://elib.fa.ru/ebsco/2372578.pdf>.

Record create date: 8/19/2019

Subject: Rare diseases — Information resources.; Medical informatics.; Communication in medicine.; Social media in medicine.; Medicine — Data processing.; Social media.; Rare Diseases; Health Communication; Social Media; Medical Informatics Applications; Medical Informatics; Maladies rares — Sources d'information.; Médecine — Informatique.; Communication en médecine.; Médias sociaux en médecine.; Médias sociaux.; social media.; Communication in medicine.; Medical informatics.; Social media in medicine.

Collections: EBSCO

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Group: Anonymous

Network: Internet

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"This book explores the use of computer-mediated communication in rare diseases and disorders"--.

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Table of Contents

  • Cover
  • Title Page
  • Copyright Page
  • Book Series
  • Editorial Advisory Board
  • Table of Contents
  • Detailed Table of Contents
  • Preface
  • Acknowledgment
  • Chapter 1: Talking About Rare Diseases
  • Chapter 2: Health-Related Communication and Rare Diseases
  • Chapter 3: Designing Sustainable Social Media Health Communication Campaigns for Promoting Rare Diseases
  • Chapter 4: Digital Media in Rare Diseases or “Knowledge Is Power”
  • Chapter 5: Public Media Coverage of Rare Diseases and Disorders
  • Chapter 6: Representation of Patients With Rare Diseases in Spanish Media
  • Chapter 7: Networks in Rare Diseases
  • Chapter 8: Challenges of Parents With Children With Rare Diseases in Portugal
  • Chapter 9: Neuropsychiatry in Late Onset Tay-Sachs Disease
  • Chapter 10: Portraying Rare and Misdiagnosed Diseases in Movies
  • Chapter 11: How Is the Administrator's Experience in Managing Health Facebook Groups?
  • Compilation of References
  • About the Contributors
  • Index

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